The goal of Research for Ronan is to raise awareness of Parechovirus, a relatively unknown virus which has been causing severe illness in infants all over the world. Our son Ronan was unable to overcome the virus and lost his battle at 34 days old.
The goal is to educate the public and health professionals alike, and work toward raising funds for research to develop treatments. When Ronan was diagnosed with Parechovirus, the virus was considered to be rare, but to consider a virus to be “rare” when it is not routinely tested for is inaccurate and misleading.
We need to push for answers and make every effort to raise awareness.
We have officially started a non-profit - Research for Ronan.
It is a 501(c)(3) organization focused on fundraising to further research, education, and awareness of Human Parechovirus in children. Over the past year, I’ve connected with dozens of families impacted by parechovirus. Their children have varying degrees of disabilities - some with cerebral palsy, seizure disorders, vision or hearing problems, they are non-verbal or have learning disabilities, emotional regulation issues and varying